tag:blogger.com,1999:blog-75861704730935283792011-09-26T12:31:48.217-07:00Sweet Saras ChargersMelissanoreply@blogger.comBlogger91100tag:blogger.com,1999:blog-7586170473093528379.post-41830474269038106292010-09-06T06:23:00.000-07:002010-09-06T17:30:06.454-07:00

Hi everyone! This year we are keeping things simple and sweet with one 5k race and fundraiser. The race I have chosen is October 30, 2010 in Roswell, GA. It is 20$ to register. I want to encourage walkers and runners to come out and join us, as well as cheerleaders on the sidelines, or anyone that can offer a helping hand the morning of the race or simply in organizing and fundraising. Big

Melissanoreply@blogger.com0tag:blogger.com,1999:blog-7586170473093528379.post-5977287968318612682010-03-10T05:35:00.000-08:002010-03-10T06:12:24.550-08:00

It has been a long while since I updated Sara's story..my story of being Sara's mom. After all the buzz over Sara's medical coverage, and our fears that she would be left high and dry...that just simply has not happened. Her very expensive food always comes from somewhere, usually from other EOS parents that have extra..or kind friends and pharmacists with samples and know how. We are allowing

Melissanoreply@blogger.com2tag:blogger.com,1999:blog-7586170473093528379.post-49221716937579573012009-02-08T10:10:00.000-08:002009-06-09T07:29:40.062-07:00

Thankyou to The Cherokee Tribune for writing about us today, and thankyou for visiting our page and takingthe time to read about our story and running/fundraising project!To donate to the CHARGE syndrome foundation in the name of Sweet Sara's Chargers please visit Saras Charge it for Charge pageTo sponsor a runner send us an email to sweetsaraschargers@yahoo.com

Melissanoreply@blogger.com1tag:blogger.com,1999:blog-7586170473093528379.post-41525471190901346012008-12-30T09:32:00.000-08:002009-01-20T17:48:15.403-08:00

“Training is the opposite of hope”. –Nike slogan 2008My long term goal is to establish a non- profit organization that will provide financial assistance for uncovered medical expenses of chronically ill children. The costs of caring for a chronically ill child are staggering. In our case, Sara has private insurance coverage, as well as supplemental Medicaid called The Katie Beckett Waiver. The

Melissanoreply@blogger.com7tag:blogger.com,1999:blog-7586170473093528379.post-36524362975266492992008-12-29T21:18:00.000-08:002010-09-06T09:11:26.654-07:00

A slideshow of Sara's first year: Sara was diagnosed with CHARGE syndrome at about 3 months of age, and eosiniphilic esophagitis around 15 months old. These are both very rare conditions, and even more rare for them to present together as in Sara's case. She was born with a unilateral cleft lip and palate, and here in Atlanta the Scottish Rite protocol is to visit the craniofacial clinic,

Melissanoreply@blogger.com1tag:blogger.com,1999:blog-7586170473093528379.post-82531867511199786822008-12-23T08:45:00.000-08:002008-12-23T11:50:43.160-08:00

I think that I can say with confidence that overall I experience the motherload of stress, the likes of which most women and mothers will never know. Just when I think it's time to exhale, I get delivered some humbling destruction of my ridiculous plans to be in control. My closest friends call this reoccurring theme in my life "elbow, elbow, wrist, faceplant". Just when I break out the sass and

Melissanoreply@blogger.com7tag:blogger.com,1999:blog-7586170473093528379.post-68449313225215176132008-11-06T07:53:00.000-08:002008-11-09T16:39:06.628-08:00

My family has suffered for close to five years now, with sporadic relief. I work very hard to find happiness through that suffering, to remain positive and optimistic, strong and steady. I do not have a perfect record, that’s for sure, but I try. When I fail I think it catches people around me off guard, and they of course, being kind and caring individuals want to comfort me. There is a

Melissanoreply@blogger.com3tag:blogger.com,1999:blog-7586170473093528379.post-2479226858022310812008-09-12T15:36:00.001-07:002009-02-07T21:11:11.017-08:00

I've never been an especially patient person. I have always been OK with that because that means I am excited about fun times, reasonably nervous about things on the horizon, in motion, going places; doing things, growing and being a more successful me. As a young mother of two beautiful healthy boys it never occurred to me that anything idle could be worthwhile. The very essence of two young

Melissanoreply@blogger.com2tag:blogger.com,1999:blog-7586170473093528379.post-41823806607853824322008-09-12T15:36:00.000-07:002008-09-12T15:44:36.103-07:00

God fills the voidWhen sara was born and we were just desperate for help, answers, extra hands to hold our children...anything really that was better than the helplessness of our babies' strife we found that many of our friends and even family did not have an extra hand, time, or even the right words in them to give. I thought at the time that I was let down by many of them. I was brought to my

Melissanoreply@blogger.com2